cripchick's blog

this month i am spending a third of my days travelling and sleeping in hotels. all of this is taking a toll on my body and i find myself stepping back and wondering why movements i could do the day before are not possible (i keep thinking: “ohmygosh this HAS to be what muscular dystrophy is supposed to feel like”, hehe). on monday, i was in raleigh going down a hill i’ve been down a million times before. the possibility of losing my balance and tumbling out of my chair was such a real danger that i had to call a friend nearby to come walk with me. (and it’s a good thing i called him, not only was my body draining but my chair died and he had to push me back to the hotel.)

i am thinking constantly about the contradiction and the space between wanting to live a disability justice lifestyle — desperately wanting to dismantle capitalist rules of productivity that leave out many of us and force us to give up our bodies and our labor for nothing that frees our communities— but also finding my life very rooted in a disability rights assimilationist model— i can do anything this other person can do, just need the right accomodations, just need more opportunities/laws/connections, just need to work harder… it took me 7 days of working in my first job to realize that no, i am not miraculously more productive than other disabled people in the organization, things were getting done because i had put in 80+ hours the first week to prove i was of value… funny thing is the only one in the org i ever needed to prove this to was myself.

and i have found that when i am at home, working part of the day from bed is the only thing that doesn’t tear apart my body. but feeling well is hard to exchange for the fact that i type much slower in bed, that it takes me twice as long to do what i can do sitting up. i hate how that feels but i am trying to challenge myself to not just to talk about disability justice but live it— self care, interdependent relationships, questioning a system that asks me to give up my body/labor and otherizes me if i cannot. but it is hard.

this tied in with a few other things also has me thinking about what i know intellectually, what i know with my heart, what i know with my body. where those 3 things meet and what they look like. where desire, safety, intimacy fits in. it is all really confusing and i get lost easily.

here is to us finding wellness and joy in 2010. here is to listening to your body.

Human rights activists have long called out aversives [shock therapy and similar tools], restraint [physically immobilizing someone] and seclusion [keeping someone away from everyone else, also known as involuntary confinement] as human rights abuses.

These are practices that are rightfully considered torture if done to prisoners but ones that still happen in our public schools. disabled youth are targeted every day for things like hand flapping and speaking out. When these abuse tactics are used, the media says nothing, schools try to hide it, and parents often do not find out this has happened until their children are showing signs of PTSD [post traumatic stress disorder], bruising and broken bones.

Here is a video by annam20 that describes this silent abuse [trigger warning]:

You may also remember advocates fighting for the closing of the Judge Rotenberg Educational Center in recent years. JRC is one school that continues to use shock therapy and other “treatments” on children.

Recently, a bill has been introduced in Congress that addresses restraint and seclusion.

The bill, the Preventing Harmful Restraint and Seclusion in Schools Act (H.R. 4247/S. 2860), includes:

* A prohibition on the use of restraint and seclusion in schools unless a student’s behavior poses an immediate danger of physical injury and less restrictive interventions would be ineffective.
* A prohibition on the use of any mechanical restraint, chemical restraint, or physical restraint that restricts air flow to the lungs, and any other aversive behavioral intervention that compromises health and safety.
* A requirement for adequate training for school personnel imposing restraint and seclusion.
* A requirement for immediate parental notification and a school debriefing following each incident of restraint or seclusion.
* A requirement for states to create a state plan that incorporates the minimum standards and report annually on the number of incidents of restraint and seclusion.

[To sum that up--- stopping use of r & s unless student is physically attacking someone ---also know as "immanent danger"---, stopping anything that restricts air flow and other potentially life-threatening moves, better training for school personnel, letting parents know right away, school addressing each incident, and each state being required to make a plan for carrying it out and reporting.]

Right now this bill is in need of sponsors… Please use this form to contact your congressman or via congress.org asap and let them know that you will not stand for human right abuses in our schools.

mala linked to a story about a young autistic boy, Francisco Hernandez Jr, who went missing and road the NYC subway system for 11 days. her response to the story reallly struck me…

“I live in NYC and am angered that this is the first I am hearing about a Latino child missing for 11 days. I would have been on the lookout for real.”

and a commenter on the article…

“if only he could memorize skylines and drew them, then maybe someone would care.” -jacque mehoff

as well as Francisco’s mom…

“Maybe because you might not understand how to manage the situation, because you don’t speak English very well, because of your legal status, they don’t pay you a lot of attention” (on lack of support from police)

and Francisco himself…

“Nobody really cares about the world and about people.”

(if you are curious, this is what “intersectionality” really looks like. lives of disabled youth of color being structurally unvalued… or immigration status x disability x race x xenophobia x class… ).

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intersectionality= idea that all issues (race, disability, etc) are connected and if people are going to be free, society has to address them all, not just one.
structurally= big picture, by the people with power
xenophobia= being scared and not liking “outsiders”, normally people from other countries.