i need you right now

for me to believe in community i need you to be outraged. horrified. shaking your fist and not letting me be complacent. for me to believe in what we have, what we are creating, i need you to hear the news and hold me. hold me knowing that i feel like the world is crumbling down around me. hold me while being angry at a system that pretends like these are just numbers, not people. i need you to hold me and not side with policymakers, just hold me. right now, i am talking about two conversations w/ friends i had today. these are conversations where i told them that medicaid is cutting my home health care hours and they proceeded to talk about themselves. these are friends involved in cross-disability organizing who should know how detrimental losing hours is to one's independence and safety. i think this is a sentiment many are feeling around the world this week.   be outraged. be incensed. hold me.

25 comments.

  1. ((((holds))))

  2. ((HUGS))

  3. Holy shit! I’m so sorry mujer. Is it just you or is this a system wide cut? **hugs**

  4. *holds you*

  5. I wish I could be there to hold you in person.

    Other than offering our moral support, is there anything we can do for you?

  6. I am beyond outraged! It seems that Medicaid gets off on denying people the services they need. It is dangerous not to have the hours you need for attendant services. It is a health and safety risk!

  7. You know you have my support! I wish I could hold you from afar. I’m holding you in my thoughts and my mind.

  8. *hugs*

    I wish that there was more I could do.

  9. *hugs*

  10. That’s outrageous. How can they do that? What can we do ? Is there some kind of appeal process? Please let us know…

    (((Holding you too)))

  11. thank you all for your support. it looks like it’s not just my services being cut— getting ready to wage something big.

    will keep you all in the loop, it sounds like letters from everyone is helpful for my case personally and other disabled people who utilize this program.

    but seriously— so blessed to be connected to yall through the internet. thank you for supporting me.

  12. I hope you don’t mind being held by a stranger.

    Came here via Shannon.

  13. oh shitting hell.

    too many of my people. too fucking many of my people. too many going thru the same shit under slightly different names, here in the uk and you as well… it’s late and i shouldnt be reading blogs, i should be in bed, so i’m not being very coherent, but yes i am outraged, and sending you all the love and rage it’s possible to from the other side of an ocean…

    (((((((cripchick)))))))

  14. I am so sorry and mad to hear this. You have so much to do!

    I hope there’s some way to appeal this.

    *hugs*

  15. *WHAT THE*????

    I’m too mad and hurt to say anything else right now, but

    *gentle hugs*

  16. If letter writing would help you, please let us know to who and where to send them. I am more than happy to do that and to spread the word as much as I can.

    Thinking of you
    Kisses

  17. I hope you’re ok. I hope you find some way of stopping them cuttig your hours.
    I’m sorry, but I CAN’T be angry for you. All I can feel is despair. My brothers and sisters aren’t thought of as people. I’m too sad and too used to it to be angry. But I will hold you (virtually) and maybe together we can find the strength to be angry and believe we have a right to be alive and safe.

  18. i’m sorry. it’s scary. i hope you have some friends nearby just in case people need each others’ help. i have a feeling there’s gonna be a lot of that soon.

    i am outraged. but i’m so outraged so fast and so intensely the last few years i keep hitting a circuit breaker. and i think its either go mad or cycle. within myself i have had to build other responses to calamity and crisis if only to stay sane. or maybe i’m just getting old.

    but i am with you in every way i can be. and if its not enough and you think i can help, and you need help please drop me a line.

    and i love your blogging. stay strong and so very honest, my friend.

  19. Hope late hugs still count. I am infuriated that systems ever and always trump people.

  20. *huge hug*

  21. I also hope you don’t mind being held by strangers. I’m outraged. Who do I shout at from the other side of the pond?

  22. (((hugs))))

    South Carolina is cutting major benefits also, as you probably know. Mark Sanford is a swine, and considered a big “rising star” in the GOP.

  23. Wow. Isn’t that charming. I hate people sometimes.

    By the by, I’m new here.

  24. trackback-

    Happy Inauguration Day

  25. Medicaid, Medicare–all the gov’t programs are cutting everywhere. And I can understand the need: The whole freaking world is going broke. But of all the things to cut! Jesus in a jetpack.

    I am sorry I only found this post today: You’ve been freaking out for almost two months now. But here’s a belated hug.

    I appreciate all over again how lucky I am to live with family: My family can’t be cut out of some government entity’s budget.

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